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We first met Tiana eight years ago when she was a guest on Radiothon in 2008. Her journey with the Alberta Children’s Hospital began when she was six and complained about bright lights bothering her and bad headaches that would make her vomit. Doctors suspected she might have migraines but tests revealed the episodes she was having were in fact absentee seizures and what she was suffering from was actually a form of epilepsy. An MRI later revealed they were coming from one area of her brain. Soon she was having several types of seizures that included strange visions of things like rainbows and sparkly lights, as well as weird sensations in her hands. During one seizure at Lake Bonavista with friends, she became so disoriented she slipped right into the lake with her clothes on. After trying several different medications that weren’t helping, Dr. Hader performed a surgery when she was 8 years old to remove most of her left temporal lobe affecting memory function, and all of her occipital lobe primarily affecting vision. She suffered some vision loss, but was seizure free for 4 ½ years, then had a tonic-clonic seizure at age 13. Once again medications weren’t working to stop the 20 seizures she was having a week.
Just this year, all that changed when Dr. Hader performed another surgery that has stopped her seizures! After a surgery with the help of the donor-funded ROSA (Robotic Surgical Assistant) in September to help pinpoint the location of her seizures, Dr. Hader just a month ago removed another part of her left side of her brain, in the cerebral cortex which controls motor function. She is on medication still, but is now seizure free!
Tiana can now say after a long journey, she is seizure free thanks to her latest brain surgery a month ago. It’s been a long road getting here involving several medications and operations, but her family is grateful for the amazing staff who has been with them every step of the way.